A little about a rotten little thing called Devics

You say you have no idea what that is well join the crowd!  It is an awful monster that I live with everyday.  It attacked me when I least expected it.  I was sitting in a meeting (a very boring meeting I might add) when suddenly I had an awful pain in my left eye.  Me being me decided that even though it felt like someone had stabbed me in the eye with an ice pick I should finish out my work day.  I noticed that everything in my left side vision was blurry but I stumbled through my day and drove home.  The next morning I knew something was really wrong I was not able to see out of my left eye!  I will never forget the eye doctor off handedly saying ,not to me but the resident, she is blind in that eye.  I must have a made noise because the resident said to me I am sorry. 

This was the start of a long journey.  It took 2yrs and me falling and being unable to get up on my own before I was told I had Devics. It is very rare and no one seems to know about it unless they are a nuro versed in it.  I have no love for the monster but we have come to know each other well.  It put me in the hospital and I fought my way out.  It put me in a wheelchair and I fought my way out of it.  Will I win against the monster?  Doctors tell me no.  See the monster always wins in the end.  Will I keep fighting it?  Oh yeah with my last breath! 

I will talk about my monster Devics from time to time.  I promise this will not become a disease blog. LOL  But Devics has helped me see the world a bit differently.  I am now disabled and I realised how often I have over looked people with disabilities.  I no longer do that, I am very aware of the hardships.  He has taught me other things I will share in time.  So now you know a little more about the monster and me.

The day after Christmas

The day after Christmas and all through the house is paper shreds, bows and no room for a wee mouse.

I in my shorts and broom in my hand chase down each tiny speck of T-paper I can stand! Mocha my pet, thinks the new rolls his present. So to the shreding he scurrys. I am not sure what is his hurry.

I am turning in my head to see what is the matter and find that somehow there is cookie batter splatter. I wonder how in the world it got in such a strange place with a complete look of confusion all over my face.I exclaim I haven't baked for 2 days and look at this place!

The presents are stacked all over the place and now I must some how find the space. I hurry and scurry with rag, mop and a broom. In the hopes that no one knocks any time soon!

Christmas is wonderful I exclaim with a shout. It's the day after I have my doubts about!

The weather outside is ........BEAUTIFUL

Well the world around my home is turning a lovely white!  I love snow it makes even the dead looking trees look beautiful.  I enjoy watching it cover the cold ground in a blanket of fluffy snow.

My sassycat decided he might like to sneak outside but when one soft little paw hit the cold snow he made a hasty retreat. LOL  My wonderful dog has removed  all the bottom limbs off my Christmas tree.  This does not make me happy!  If I am looking on the bright side it would be that it will be easier to take it down.  I'm all about easy due to my many health issues.

I am almost ready for Christmas only a few more gifts to buy.  My cookies are slowly getting baked and nut roll is the plan today.  My life is not exactly exciting but I love it.

Christmas thoughts

It is Christmas once again.  The snow has covered the ground and everything looks clean and new.  I love this time of year!  I love having a beautiful tree all done in white lights and crystal decoration.  I enjoy the garland decorating my loft. I find the smell of homemade cookies to be one of the best in the world.

With all that said I also find it a hard time of year.  I find it sad not to have the money to buy everything my friends and family would like.  I find it is a time of tears for those I miss so very much.  I miss my grandparents who made so many wonderful memory for me.  I miss my mother who was not only a fantastic mother but also my best friend!  So yes it is a sad time also.

I hope to use this as a place to ramble on about life and also to express thoughts and feelings.  From time to time I will post some of my writings and poems.  I hope you enjoy the time you spend here. :)